What Resources Are Available for People With
Cholangiocarcinoma (CCA)?
Being diagnosed with CCA can be overwhelming. That’s why it is important to have the right support and information.
Here you will find helpful CCA patient education tools and resources.
Molecular Profiling Discussion Guide
This guide includes questions you may want to ask your oncologist about CCA and molecular profiling to help you get the conversation started.
NGS Testing Guide for Patients
This guide helps you understand what next-generation sequencing (NGS) is, and how talking to your doctor about it can help you find the best treatment options for your cholangiocarcinoma.
NCCN Guidelines for Patients®: Gallbladder and Bile Duct Cancers
Learn more about CCA and potential management approaches in this publication from the National Comprehensive Cancer Network® (NCCN®), a not-for-profit alliance of 33 leading cancer centers devoted to patient care, research, and education.
Nutrition Resource for Cholangiocarcinoma Patients
The Cholangiocarcinoma Foundation (CCF) offers a free guide that contains helpful nutrition information, suggested meal plans, and recipes specifically for the CCA community.
Patient Stories
Remember, you are not alone. Read the stories shared by others diagnosed with CCA and their caregivers, and see how molecular profiling played a part in their journeys.
Interactive Guide to Cholangiocarcinoma
This guide will provide you with more information about CCA, including symptoms, diagnosis, and how the disease can affect daily life.
These organizations help support CCA awareness, advocacy, and research:
Understanding Clinical Study Results
This video provides information about what researchers look for in clinical studies and how results are measured.